I have a neurological condition that is known to cause unending head pain and tinnitus. This condition is known for being resistant to treatment. Most of the people I know with this condition, NDPH, are living life practically disabled. Tinnitus alone has driven many people to the brink of suicide, and even past that brink. Medical science does not have good answers for these conditions, and anyone experiencing them knows how hopeless the situation feels. Yet support groups are silencing all psilocybin success stories.
I am quite now quite comfortable and pain free. However, I am not allowed to speak of what worked for me in any of the support groups. If I share peer reviewed published articles about what gave me my life back, I will be chastised and booted from the group. Talking about psilocybin in these groups is still taboo, even though multiple states have either legalized or are moving towards legalization.
Why Is No One Sharing Their Success?
Easy answer. We are ostracized and run out of each support group. We are not allowed to participate in the conversation anymore. Despite psilocybin being all over news headlines for how effective it is for treatment resistant depression and its effects on neurogenesis and neuroplasticity, mentioning success with it will get you banned.
Outdated opinions and attitudes are preventing people with these debilitating conditions from finding relief. Those who found relief are forced to hide in the shadows. With treatment like this, I can’t blame them for walking away and never looking back.
Why Silence The Discussion?
Psilocybin has been granted breakthrough therapy status by the FDA. It is being used in various trials at multiple institutions. Multiple corporations are scrambling to patent variations and specific delivery methods to be well positioned when this becomes mainstream. Yet we have patient support groups where no one is allowed to even mention it. MindMed is traded on the public stock exchange, yet mentioning the fact that psilocybin helped me will get me kicked out of multiple headache support groups. I am allowed to invest in the companies that will make billions on this market, but I am silenced when I try to tell people how to benefit on their own.
The Right Side Of History
10 years ago, discussing medical marijuana or CBD was taboo in support groups. Now there is a CBD store on every corner, and everyone feels free to discuss it. With psilocybin, it is only a matter of time before this is a reality too.
A Curated, False Reality
When certain voices and experiences are culled from a group, it creates a false reality. There are so few people who have found a solution for NDPH, tinnitus, or hemicrania continua. If the success stories are silenced just because some people do not like the narrative, only despair and suffering remain.
When I started talking about my story, I was shocked at the number of people that contacted me privately to tell me that they had a similar experience. I was further shocked to hear how they are forced into silence.
Would I have spent less time suffering if they had been allowed to tell their story? Maybe I would have found my “cure” sooner if those that went before me were not silenced and discarded.